And so it goes

Life has been pretty tame here. Eddie is working on standing, in an effort to get into even more.

I got the files together for the new doctor. His apnea monitor records were over 160 pages long. Four weeks of recording, 84 apnea events. the most in one night was 12.

 

I got all of his other files as well. I found out from reading his bronch report that he also has something called Innominate artery compression . See image 2.

 

I am really hoping that this new doctor can help us, a lot more than anyone else as. Right now we are just waiting. Waiting for the appointment. Waiting to be able to move forward. I look forward to a night where I don't have to tape up his little face to keep the oxygen on, when we don't have to plan around doctors appointments. When things get normal again. Well, as normal, as normal gets.

 

My daughter is starting school on Wednesday. She goes between being excited, and not wanting to. I think that she will be happy once it starts, and it will be a relief to get away from her two annoying little brothers. Edan doesn't start school for another year, and we still have not figured out pre-school for him. I am thinking we will sign him up after the new year. I am hoping that by then we wont be bouncing back and forth so much, making it easier to keep a regular schedule. I am not sure how he will do without his big sister there, though. He idolizes her, as long as she's not making him angry. :)