Today we saw the new pulmonologist . We were in the office for an hour and twenty minutes talking to her, and she's going to review all the information and email me tomorrow with a better idea of what we will be doing.
As it stands, it is very likely that Eddie's central apnea is a result of brain injury that occurred during his birth. When he was born, the cord was wrapped around his neck three times. He was in distress, and I was about to have a C-section when he suddenly made his appearance. I had about a week previous to his birth where labor kept starting and stopping, probably because he was in distress.
The doctor told us it could be brain, or brain stem. One gets better, the other doesn't, but it doesn't get worse either .Either way, we wont know how badly he has been affected by it until he gets older and he grows and develops more. Right now, that is the best guess, but we will need more testing, another sleep study, and an MRI.
I am not sure how I feel. At least we are going in a direction? It just doesn't seem, fair I guess? That he has problems he was born with, problems that he got from being born... I don't know. I do know that I really shouldn't complain. There are people out there with children who are going through bigger issues.
For us, right now, its just testing , and waiting. Hopefully we will get closer to a resolution soon.
No comments:
Post a Comment