Send coffee

This week none of us were feeling particularly well. It started with Eddie, crying almost non stop, and sleeping horribly. He was congested, and it makes using the oxygen pointless, because if your nose is stuffed up, you are not breathing anything through the nasal cannula.

  By the second night Eddie was sleeping in his swing and I was sleeping on the couch because his apnea monitor would not stop going off. I try and keep track of how many times a night it does, but after a certain point, it was futile.

 We had one scary episode that he was really hard to wake up from. I think it lasted almost a full minute. It was the first time in months I almost called 911. Thankfully he woke up.

   When he has these episodes, it is really surreal. He turns greyish and he's not moving at all , and it seems like we have stepped out of reality for a moment.

 Between now and the 10th, I have to get all of his tests together to take to the new pulmonologist, including the records off his apnea monitor. That I am doing last, because I want her to have everything up to the latest episodes. She wants the detailed event reports so that she can see what exactly is going on, and the days leading up to the nights where it is non stop.

Hopefully we will actually get somewhere this time.

Eddie seems to be feeling better, but his stridor is really bad right now, when he breathes he's either panting, or making this awful barking sound, poor kid. The upside is that he is sleeping better as of last night. I promise to try and have the next post be lest scattered and down, I am just really worn out. Send coffee and yarn.